Paediatric Palliative Care Day - Friday 8th October

As part of this year’s congress, the Scientific Committee and the EAPC’s Children and Young People Task Force Steering Group have again planned an entire day dedicated to paediatrics, full of meaningful and challenging content. 

This year we have two wonderful and engaging plenary speakers – Richard Hain, a paediatric palliative care doctor, from Wales, and Joana Mendes, a neonatology palliative nurse, from Portugal. Coming from different backgrounds, their interests converge in their advanced studies in ethics, and they will be stimulating us to think about the ethical boundaries in palliative care. Dr Hain, co-author of the Oxford Specialist Handbook of Paediatric Palliative Medicine, will also provide an overview of his practical approach to symptom control at the end of life. Further programme details will follow shortly.

Programme Outline (all times based on Central European Time)

8.00 am   Meet the experts: Richard Hain, Joana Mendes

9.00 am   Plenary Main EAPC Congress

10.00 am   Plenary: Interventions at the end of life in children: where evidence meets experience – Richard Hain

11.00 am    Free Communication Session: Advancing Advance Care Planning

  • Evaluating attitude, self-efficacy, behaviour, and intention to engage in advance care planning communication in paediatric oncology: development and face validation of a new measurement instrument – Anne VanDriessche
  • Parental decision-making behaviours in paediatric ACP: A qualitative study – Kathrin Knochel
  • Patterns in discussing End-of-Life in paediatric Advance Care Planning conversations – Jurrianne Fahner
  • Impact of Advance Care Planning in Paediatric Oncology – Miguel Vieira Martins
  • Conceptualising paediatric advance care planning; is it more than just ‘do not attempt resuscitation’? – Sidharth Vemuri

12.00 md   Parallel Session: Transitioning children with palliative care needs between settings and phases

  • From hospital to home or hospice care – Mette Asbjöern Neergard
  • From NICU to home care – Finella Craig
  • From chronic phase to EoL. – Laura Madanat

1.00 pm    Lunch time with Paediatrics – Ana Lacerda, Lizzie Chambers

2.00 pm   BREAK

3.00 pm   Free communication Session: Sharing learning from across the globe

  • What matters to children and families facing advanced cancer? Identification of priority outcomes to improve paediatric palliative care in Turkey and Jordan – Sabah Boufkhed
  • End of Life Care for Newborns with Major Congenital Malformations in a Tertiary Neonatal Referral Center in Brazil – Maria Augusta Gibelli
  • The Butterfly Pathway: Supporting Families Following the Antenatal Diagnosis of a Life-limiting Condition in a Neonatal Intensive Care Unit Setting – Charlotte Burleigh
  • Existential and spiritual care needs of parents of children with a life-limiting condition, a qualitative interview study – Marije Brouwer
  • Existential Concerns of Children and Young People with Life-limiting or Life-threatening Conditions – Hannah Scott

4.00 pm   Plenary: Balancing aggressive treatment and palliative care – is it achievable? – Joana Mendes

5.00pm   Networking opportunity

6.00 pm   Plenary Main EAPC Congress

If you register for the main congress, attendance at the Paediatric Palliative Care Day is free. Alternatively you can register to attend the day – Register. To qualify for the EAPC member rates for the Paediatric Palliative Care Day you must first join the EAPC by registering on the new EAPC website as an individual or an associate member. Membership runs from January 1st to December 31st each year. 

Learn more about the plans for the Paediatric Palliative Care Day and other key sessions at this years EAPC world congress on the EAPC Blog